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Conceptualizing impact in community-based participatory action research to engage communities in end-of-life issues
Karolinska Inst, Dept Neurobiol Care Sci & Soc, Alfred Nobels 23,Flemingsberg, S-14183 Stockholm, Sweden..ORCID iD: 0000-0003-4036-707X
Stockholm Univ Arts, Res Ctr, Stockholm, Sweden..
Skaraborg Inst Res & Dev, Skövde, Sweden.;Uppsala Univ, Dept Sociol, Uppsala, Sweden..
Karolinska Inst, Dept Learning Informat Management & Eth, Stockholm, Sweden.;Stockholm Hlth Care Serv SLSO, Stockholm, Sweden..ORCID iD: 0000-0003-4161-0342
2022 (English)In: Palliative Care and Social Practice, E-ISSN 2632-3524, Vol. 16, article id 26323524221095107Article in journal (Refereed) Published
Abstract [en]

Background: A health promotion approach to end-of-life (EoL) care is gaining traction internationally. However, there is a lack of evaluations of the impact of this approach, particularly regarding community-based initiatives. Conceptualizations of impact in participatory action research (PAR) may contribute to understanding ways in which impact can be investigated in community-based health promotion approaches to EoL issues. We aim to investigate impact and the process of impact development in our community-based PAR project, Studio DoBra, a Swedish health promotion initiative to engage communities in EoL issues. Methods: We do this through a qualitative framework analysis expanding on Banks et al.'s theory of co-impact in PAR, based on longitudinal empirical data of Studio DoBra. Studio DoBra was developed in partnership with a range of community organizations and engaged children (9 years old) and older adults (most 80+) with topics related to dying, death, and loss through arts activities. The analyzed empirical data reflect the perspectives of community-partners and academic partners from interviews and meetings spanning 4.5 years. Findings: We present a model of impact development consisting of impact on individual and group development, action-oriented impact, and strategy-oriented impact; ways they relate to and evolve from one another; and how they may be affected by contextual influences. Conclusion: Besides contributing to conceptualizations of impact in PAR, findings contribute a community perspective to the limited literature investigating the impact of health promotion initiatives related to EoL issues.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS INC , 2022. Vol. 16, article id 26323524221095107
Keywords [en]
community-based, end-of-life, health-promoting palliative care, impact, participatory action research
National Category
Nursing
Identifiers
URN: urn:nbn:se:mdh:diva-70783DOI: 10.1177/26323524221095107ISI: 001126594400014PubMedID: 35573090Scopus ID: 2-s2.0-85130153392OAI: oai:DiVA.org:mdh-70783DiVA, id: diva2:1950311
Available from: 2025-04-07 Created: 2025-04-07 Last updated: 2025-10-10Bibliographically approved

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Kleijberg, Max

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