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Stroke survivors' health literacy is not associated with caregiver burden: a cross-sectional study
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm.
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.ORCID iD: 0000-0003-3781-7615
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
Women's Health and Allied Health Professionals Theme, Karolinska University Hospital, Stockholm, Sweden.
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2025 (English)In: Scientific Reports, E-ISSN 2045-2322, Vol. 15, no 1, p. 4720-, article id 4720Article in journal (Refereed) Published
Abstract [en]

Caregivers to stroke survivors often experience a multifaceted strain defined as caregiver burden. Low health literacy among caregivers may contribute to increased caregiver burden but there is limited research specifically examining the association between stroke survivors' health literacy and caregiver burden. Therefore, the aim here is to explore if there is an association between stroke survivors' health literacy and caregiver burden one year after stroke. Participants were 50 caregivers and 50 stroke survivors who were followed up in a longitudinal study on care transitions after stroke. Data were collected one year after the stroke survivors' discharge from hospital and analysed using ordinal logistic regression. Most of the caregivers, median age 71 years, reported being satisfied with their lives (85%) and a low caregiver burden (74%). Stroke survivors' health literacy was not associated with caregiver burden. However, lower needs of assistance in daily activities, lower levels of depression, higher levels of participation and increased age in stroke survivors were associated with lower caregiver burden. In conclusion, stroke survivors' health literacy was not associated with caregiver burden one year after stroke. Future studies with larger samples, focusing on populations with lower functioning after stroke and higher caregiver burden, are recommended.

Place, publisher, year, edition, pages
Springer Nature , 2025. Vol. 15, no 1, p. 4720-, article id 4720
Keywords [en]
Care recipient, Care transitions, Caregivers, Cross-sectional, Functioning, Self-management behaviours
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Other Health Sciences
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URN: urn:nbn:se:mdh:diva-73808DOI: 10.1038/s41598-025-89523-xISI: 001415897900010PubMedID: 39922929Scopus ID: 2-s2.0-85218246383OAI: oai:DiVA.org:mdh-73808DiVA, id: diva2:2008174
Available from: 2025-10-22 Created: 2025-10-22 Last updated: 2025-10-28Bibliographically approved

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